You will be the first to know if your symptoms return after surgery, or if they never went away in the first place. This can be disappointing. Listed below are options that can help. Don't wait! Talk to your doctor right away about how to take that next step toward making it better. Remember, you are your best advocate!
Recurring or Persistent Cushing's Disease
I was very sad that the problem was back. I was angry and upset that I now had to go through the process all over again.
What is the difference between recurring and persistent Cushing's disease?
Although transsphenoidal surgery (TSS) is the first choice of treatment for Cushing's disease, sometimes it may not work. Maybe your symptoms did get better for a bit, but now are returning. This is known as recurring Cushing's disease.
If your symptoms never went away after surgery, you may be experiencing what is known as persistent Cushing's disease. Either way, this can feel defeating, but there are steps you can take to reduce your cortisol levels.
Knowing there were options to treat my symptoms was uplifting for me in a sense. I had confidence in the team to solve this. A lot of optimism and positivity.
We get it, the treatment path for Cushing's disease can be overwhelming. No matter where you are in your journey, know that there are options. It may take time, but with help from your healthcare team, your quality of life can improve. Don't give up on your journey to wellness.